Experiences from the ZEVASKYN community

Hear from patients, caregivers, and EB experts as they share their experiences with ZEVASKYN

Geovanna, a ZEVASKYN patient, smiling
Video Time: 9:04

Geovanna

One family's search for healing leads them to ZEVASKYN: Meet 8-year-old Geovanna
Play
Noelle, a ZEVASKYN patient, smiling at the camera
Video Time: 7:46

Noelle

Fragile skin & fierce spirit: Meet Noelle
Play
Mohamed, a ZEVASKYN patient, looking at the camera
Video Time: 9:38

Mohamed

The journey to healing and having hope: Meet Mohamed and Sarah
Play
Antonio, a ZEVASKYN patient, smiling at the camera
Video Time: 7:34

Antonio

Life after ZEVASKYN: Meet Antonio
Play
  • EB=epidermolysis bullosa.
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Strong Together Network thumbnail

We are stronger together—your story matters

Share your story

Your voice is important. Whether you are on your own personal ZEVASKYN treatment journey or have cared for someone who has received ZEVASKYN, your experience can inspire and support others. Through the Strong Together Network, you may have the opportunity to share your story with other patients and caregivers who are looking for real-life insights and connection.

To learn more about the Strong Together Network and how to participate, contact Abeona AssistTM at 1-855-ABEONA-1 (1-855-223-6621) Monday through Friday, 9:00 am to 6:30 pm ET.

You must be at least 18 years of age or accompanied by a parent or guardian and reside in the United States. Please note that sharing your story is not a guarantee of participation in the network.

  • Strong Together Network Patients and Caregivers do not provide medical advice and only share their personal experiences. ​Conversations are not meant to take the place of discussions with your healthcare provider.
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What is ZEVASKYN?

ZEVASKYN™ (prademagene zamikeracel) is a type of gene therapy made from your own skin cells that is surgically applied to treat wounds in both children and adults who have recessive dystrophic epidermolysis bullosa (RDEB).

Important Safety Information

  • Serious allergic reactions to ZEVASKYN can occur. Get medical help right away if you or your child experience symptoms like itching, swelling, hives, difficulty breathing, runny nose, watery eyes, or nausea. In rare cases, a severe reaction called anaphylaxis may happen.
  • There is a potential risk that treatment with ZEVASKYN may contribute to the development of cancer because of how the therapy works.  Patients should be monitored for the rest of their lives to check for any signs of cancer.
  • ZEVASKYN is made using human and animal materials. Although these materials are tested before use, the risk of passing on infections cannot be eliminated.
  • The most common side effects are pain from the procedure and itching.

This is not a complete list of side effects. Call your care team for medical advice about side effects. You may report side effects to Abeona at 1-844-888-2236 or FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.

Post-Application Care

  • You may feel pain or itching at the treated area as it heals. Contact your doctor if you have: fever, increased drainage, worsening pain or swelling, or any other symptoms at or near the treated area.
  • Do not disturb the surgical dressing for 5—10 days, unless your doctor tells you otherwise.
  • Keep the dressing(s) dry. Do not soak the treated area(s) in water (like in a bath or pool) until the gauze backing falls off of the treated area(s), approximately 2—3 weeks after the surgery.

Product Manufacturing

  • ZEVASKYN is made from your own skin cells. In rare cases, the manufacturing process may not work. If this happens, your doctor may suggest taking another skin biopsy to repeat the manufacturing process.

Please see full Prescribing Information.

What is ZEVASKYN?

ZEVASKYN™ (prademagene zamikeracel) is a type of gene therapy made from your own skin cells that is surgically applied to treat wounds in both children and adults who have recessive dystrophic epidermolysis bullosa (RDEB).

Important Safety Information

  • Serious allergic reactions to ZEVASKYN can occur. Get medical help right away if you or your child experience symptoms like itching, swelling, hives, difficulty breathing, runny nose, watery eyes, or nausea. In rare cases, a severe reaction called anaphylaxis may happen.
  • There is a potential risk that treatment with ZEVASKYN may contribute to the development of cancer because of how the therapy works.  Patients should be monitored for the rest of their lives to check for any signs of cancer.
  • ZEVASKYN is made using human and animal materials. Although these materials are tested before use, the risk of passing on infections cannot be eliminated.
  • The most common side effects are pain from the procedure and itching.

This is not a complete list of side effects. Call your care team for medical advice about side effects. You may report side effects to Abeona at 1-844-888-2236 or FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.

Post-Application Care

  • You may feel pain or itching at the treated area as it heals. Contact your doctor if you have: fever, increased drainage, worsening pain or swelling, or any other symptoms at or near the treated area.
  • Do not disturb the surgical dressing for 5—10 days, unless your doctor tells you otherwise.
  • Keep the dressing(s) dry. Do not soak the treated area(s) in water (like in a bath or pool) until the gauze backing falls off of the treated area(s), approximately 2—3 weeks after the surgery.

Product Manufacturing

  • ZEVASKYN is made from your own skin cells. In rare cases, the manufacturing process may not work. If this happens, your doctor may suggest taking another skin biopsy to repeat the manufacturing process.

Please see full Prescribing Information.

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ZEVASKYN, Abeona Assist, and the related logos are registered trademarks of Abeona Therapeutics Inc. All other trademarks are the property of their respective owners.

© 2025 Abeona Therapeutics Inc. All rights reserved. US-COM-ZEV-250005  05/25