ZEVASKYN Support & Resources

Abeona Assist™ Strong Together Network Share your story Support organizations Downloadable resources

Abeona Assist™ is your dedicated support partner every step of the way

If you are considering ZEVASKYN or have questions, Abeona Assist is here to help

  • ZEVASKYN treatment
pathway

    Our trained Patient Navigators* provide information on ZEVASKYN, what to expect, and next steps to take.

  • Coverage review and financial assistance†

    Our team works to explore your benefits, identify out-of-pocket costs, and provide information about access and reimbursement.

  • Travel and logistical support†

    Our team helps coordinate travel to a ZEVASKYN Qualified Treatment Center and provides support during your stay.

call-icon Phone icon

To locate a ZEVASKYN Qualified Treatment Center, get your questions answered, and enroll in Abeona Assist:

Call 1-855-ABEONA-1 (1-855-223-6621)

Monday-Friday
9:00 am-6:30 pm ET

Abeona Assist™ logo
  • *Patient Navigators do not direct patient care or provide medical advice.
  • †Eligibility requirements apply.

Connect one-on-one with a Strong Together Network Patient or Caregiver‡

Whether you are just beginning to explore your options or are ready to take the next step, the Strong Together Network is here to support you.

The Strong Together Network is a group of patients and caregivers who have received treatment with ZEVASKYN or have cared for someone who has received treatment. They can connect one-on-one with you to discuss their personal journey and experiences with ZEVASKYN and how it has impacted their lives.

  • ‡Strong Together Network Patients and Caregivers do not provide medical advice and only share their personal experiences. Conversations are not meant to take the place of discussions with your healthcare provider.
Strong Together Network thumbnail
Strong Together Network thumbnail

Have you or someone you care for received ZEVASKYN treatment?§

Share your story

Your voice is important. Whether you are on your own personal ZEVASKYN treatment journey or have cared for someone who has received ZEVASKYN, your experience can inspire and support others. Through the Strong Together Network, you may have the opportunity to share your story with other patients and caregivers who are looking for real-life insights and connection.

To learn more about the Strong Together Network and how to participate, contact Abeona Assist™ at 1-855-ABEONA-1 (1-855-223-6621) Monday through Friday, 9:00 am to 6:30 pm ET.

You must be at least 18 years of age or accompanied by a parent or guardian and reside in the United States. Please note that sharing your story is not a guarantee of participation in the network.

  • §Strong Together Network Patients and Caregivers do not provide medical advice and only share their personal experiences. Conversations are not meant to take the place of discussions with your healthcare provider.

Support organizations

Navigating life with RDEB is easier with the right support network. These organizations offer resources and connections for individuals and families affected by RDEB.||¶

 
  • ||Inclusion on this list does not represent an endorsement or a recommendation from Abeona Therapeutics.
  • The organizations listed are independent from Abeona Therapeutics.

Downloadable resources

You can download, print, or revisit these resources anytime throughout your ZEVASKYN experience.

Patient brochure

Patient brochure

View a printable version of the ZEVASKYN patient brochure, which includes questions you may want to ask your doctor.

Download
The Strong Together Network

The Strong Together Network

A group of patients and caregivers who have experienced treatment with ZEVASKYN

Download
Abeona Assist

Abeona Assist

Provides support for patients considering ZEVASKYN

Download
  • RDEB=recessive dystrophic epidermolysis bullosa.
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What is ZEVASKYN?

ZEVASKYN™ (prademagene zamikeracel) is a type of gene therapy made from your own skin cells that is surgically applied to treat wounds in both children and adults who have recessive dystrophic epidermolysis bullosa (RDEB).

Important Safety Information

  • Serious allergic reactions to ZEVASKYN can occur. Get medical help right away if you or your child experience symptoms like itching, swelling, hives, difficulty breathing, runny nose, watery eyes, or nausea. In rare cases, a severe reaction called anaphylaxis may happen.
  • There is a potential risk that treatment with ZEVASKYN may contribute to the development of cancer because of how the therapy works.  Patients should be monitored for the rest of their lives to check for any signs of cancer.
  • ZEVASKYN is made using human and animal materials. Although these materials are tested before use, the risk of passing on infections cannot be eliminated.
  • The most common side effects are pain from the procedure and itching.

This is not a complete list of side effects. Call your care team for medical advice about side effects. You may report side effects to Abeona at 1-844-888-2236 or FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.

Post-Application Care

  • You may feel pain or itching at the treated area as it heals. Contact your doctor if you have: fever, increased drainage, worsening pain or swelling, or any other symptoms at or near the treated area.
  • Do not disturb the surgical dressing for 5—10 days, unless your doctor tells you otherwise.
  • Keep the dressing(s) dry. Do not soak the treated area(s) in water (like in a bath or pool) until the gauze backing falls off of the treated area(s), approximately 2—3 weeks after the surgery.

Product Manufacturing

  • ZEVASKYN is made from your own skin cells. In rare cases, the manufacturing process may not work. If this happens, your doctor may suggest taking another skin biopsy to repeat the manufacturing process.

Please see full Prescribing Information.

What is ZEVASKYN?

ZEVASKYN™ (prademagene zamikeracel) is a type of gene therapy made from your own skin cells that is surgically applied to treat wounds in both children and adults who have recessive dystrophic epidermolysis bullosa (RDEB).

Important Safety Information

  • Serious allergic reactions to ZEVASKYN can occur. Get medical help right away if you or your child experience symptoms like itching, swelling, hives, difficulty breathing, runny nose, watery eyes, or nausea. In rare cases, a severe reaction called anaphylaxis may happen.
  • There is a potential risk that treatment with ZEVASKYN may contribute to the development of cancer because of how the therapy works.  Patients should be monitored for the rest of their lives to check for any signs of cancer.
  • ZEVASKYN is made using human and animal materials. Although these materials are tested before use, the risk of passing on infections cannot be eliminated.
  • The most common side effects are pain from the procedure and itching.

This is not a complete list of side effects. Call your care team for medical advice about side effects. You may report side effects to Abeona at 1-844-888-2236 or FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.

Post-Application Care

  • You may feel pain or itching at the treated area as it heals. Contact your doctor if you have: fever, increased drainage, worsening pain or swelling, or any other symptoms at or near the treated area.
  • Do not disturb the surgical dressing for 5—10 days, unless your doctor tells you otherwise.
  • Keep the dressing(s) dry. Do not soak the treated area(s) in water (like in a bath or pool) until the gauze backing falls off of the treated area(s), approximately 2—3 weeks after the surgery.

Product Manufacturing

  • ZEVASKYN is made from your own skin cells. In rare cases, the manufacturing process may not work. If this happens, your doctor may suggest taking another skin biopsy to repeat the manufacturing process.

Please see full Prescribing Information.

Abeona Therapeutics® logo

ZEVASKYN, Abeona Assist, and the related logos are registered trademarks of Abeona Therapeutics Inc. All other trademarks are the property of their respective owners.

© 2025 Abeona Therapeutics Inc. All rights reserved. US-COM-ZEV-250005  05/25